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Table 2 Clinical data entries of the cohort

From: A Nationwide multicenter registry and biobank program for deep phenotyping of idiopathic and hereditary pulmonary arterial hypertension in Korea: the PAH platform for deep phenotyping in Korean subjects (PHOENIKS) cohort

Parameter Specific categories
Identification Data Patient code, Date of birth, Registered date
Sex, Postal code, Height & Weight
Onset Year of first symptom/first hospital visit/PAH diagnosis
WHO functional class at diagnosis Class I-IV
Symptoms at diagnosis Dyspnea/Chest pain/
Signs at diagnosis Cardiac murmur/Hepatomegaly/Elevated JVP/Pitting edema/Ascites
Vital sign at diagnosis Blood pressure-Heart rate-Respiratory rate-Body temperature
PAH family history Y/N, Specify
Medical history Connective tissue disease, Congenital heart disease
PAH inducing drug history, HIV diagnosis/treatment history, Chronic hepatic disease
6MWT Distance (meters), Blood pressure (before & after),
Pulse rate, O2 Saturation
Blood Chemistry and Hemodynamics NT-proBNP, troponin I, PT, Cr,
Electrocardiogram Normal, RVH, nonspecific
Imaging studies Chest radiography, Echocardiography, Computed chest tomography, Cardiac MRI
Cardiopulmonary exercise test pCO2, VE/VCO2, VO2/HR, peak VO2
RHC Systolic, diastolic, mean pulmonary arterial pressure, pulmonary wedge pressure, right heart pressure, central vein, SvO2%, Pulmonary vascular resistance
  1. PAH pulmonary arterial hypertension, HIV human immunodeficiency virus, 6MWT 6-min walk test, NT-proBNP N-terminal prohormone of brain natriuretic peptide, PT prothrombin time, Cr creatinine, RVH right ventricular hypertrophy, MRI magnetic resonance imaging, RHC right heart catheterization