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Table 1 Study objectives of the cohort

From: A Nationwide multicenter registry and biobank program for deep phenotyping of idiopathic and hereditary pulmonary arterial hypertension in Korea: the PAH platform for deep phenotyping in Korean subjects (PHOENIKS) cohort

Study Objectives
1. To build a robust IPAH and HPAH patient registry through collaborative network across South Korea with 16 regional hospitals across the country.
2. To perform a long-term follow up of registered patients to characterize the clinical course of IPAH and HPAH patients among South Koreans.
3. To collect biospecimens of enrolled patients and to build a biobank for Korean PAH and HPAH.
4. To identify novel genetic mutations via next generation sequencing of the collected biospecimens.
5. To deep-phenotype PAH and HPAH through a detailed omics-level study from a large collection of patient samples.
  1. IPAH idiopathic pulmonary arterial hypertension, HPAH hereditary pulmonary arterial hypertension